Bologna 18 July 2023
Venue
Aula Magna Olivo, Istituto di Anatomia
Via Irnerio, 48 – Bologna
PRESENTATIONS
The ADLD Association promotes the first national meeting day of clinicians, patients, family members and caregivers on the 18th of July 2023, Together against ADLD. The ADLD Association was established in 2020 and operates in the field of scientific research with a particular social interest, pursuing the following objectives: to provide information on issues related to Autosomal Dominant Leukodystrophy (ADLD) and to fund scientific research; to bring together patients, raise awareness about the disease, and facilitate dialogue among the doctors involved; to disseminate knowledge about the disease in both the medical-scientific and public domains. The ADLD Association aims to serve as a reference point for gathering information, reports, and issues related to individuals affected by Autosomal Dominant Leukodystrophy, in order to understand the actual needs of the patients and their families.
In the first meeting will be presented the continuous updating on scientific discoveries that open new perspectives for research, moving towards the identification of new pharmacological therapies, as well as improving the diagnostic and therapeutic pathway for the patient. These are also the aims of the 1st National Day, Together against ADLD, during which patients, family members, friends, caregivers and clinicians, from all over Italy, meet and share their experiences.
PROGAM
10.00 Welcome Coffee
10.30 Welcome addresses and introduction Pietro Cortelli
Lucia Manzoli, Direttrice DIBINEM Alma Mater Studiorum – Università di Bologna
10.45 ADLD studies and projects presentation. ADLD Center | Elisa Giorgio, Stefano Ratti
11.15 Patient’s diagnostic and therapeutical process | Pietro Cortelli, Giovanna Vaula
11.45 ADLD Association and website presentation | Ilaria Cani, Elisa Giorgio, Stefano Ratti
12.00 Round table and question time | Panellists: Ilaria Cani, Pietro Cortelli, Elisa Giorgio, Stefano Ratti, Giovanna Vaula
13.00 Final comments and acknowledgments
13.15 Light Lunch
Scientific Committee
Ilaria Cani, Bologna
Pietro Cortelli, Bologna
Elisa Giorgio, Bologna
Stefano Ratti, Pavia
Giovanna Vaula, Torino
