The ADLD Association was established in 2020 and operates in the field of scientific research with a particular social interest, pursuing the following objectives: to provide information on issues related to Autosomal Dominant Leukodystrophy (ADLD) and to fund scientific research; to bring together patients, raise awareness about the disease, and facilitate dialogue among the doctors involved; to disseminate knowledge about the disease in both the medical-scientific and public domains.

The ADLD Association aims to serve as a reference point for gathering information, reports, and issues related to individuals affected by Autosomal Dominant Leukodystrophy, in order to understand the actual needs of the patients and their families.

Among the objectives of the Association is also the continuous updating on scientific discoveries that open new perspectives for research, moving towards the identification of new pharmacological therapies, as well as improving the diagnostic and therapeutic pathway for the patients.